Projects

CJD Epidemiology

project name: Creutzfeldt-Jakob Disease: Epidemiology, risk factors and diagnostic tests

initiating country: The European Union

Framework Programme: FP5       programme area: QoL – Quality of Life and Management of Living Resources

contract/proposal/call number: QLK2-CT-2000-01709

status: completed

start date: October 2000       duration: 36 months       projected finish date: October 2003

Project Budget

total budget: € 386,000

Participants

Note that the follow people may not represent the full extent of the consortium. FEAST has tried to identify the Australian participants, and their collaborators (or coordinator), within the project. Also note that Australian participation may not necessarily be on a formal level.

nameorganisationstate or country
Dr Colin MastersThe University of Melbourne VIC, Australia

Further information

summary:

There is now compelling evidence that the agent causing variant CJD (cud) is identical to that causing bovine spongiform encephalopathy. The future numbers of cases that may occur in European countries cannot be predicted. It is essential to monitor this potential outbreak and to identify risk factors for the development of cud. Assay systems to test for the presence of disease-associated prionprotein in peripheral blood have been developed and it is essential to evaluate the sensitivity and specificity of these tests in the identification of clinical and preclinical infection. The validation of such a test would have profound implications for the study of CJD epidemiology and for public health and a large series of cases is required. This proposal addresses both these objectives through the co-ordination and harmonisation of national CJD surveillance projects and in validating novel blood assay systems.

Coordinator
Organization name: University of Edinburgh
Contact person Address
Name: Robert SMAILES (Dr) Old College
South Bridge
EH1 1HN
Edinburgh
UNITED KINGDOM

Region: SCOTLAND BORDERS-CENTRAL-FIFE-LOTHIAN-TAYSIDE Lothian
Tel:
Fax: +45-45-169292
E-mail:
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Other participants
Organization: CREUTZFELDT-JAKOB DISEASE SURVEILLANCE SYSTEM
Contact person Address
Name: GIULIUI, Antonio (Mr) LABORATORY CENTRE FOR DISEAS CONTROL
Tunney’s Pasture
K1A OL2
OTTAWA


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Organization: ERASMUS UNIVERSITEIT ROTTERDAM
Contact person Address
Name: LUBBE, Koos Th N (Mr) FACULTY OF MEDICINE AND HEALTH SCIENCES
50,Dr. Molewaterplein 50
3015 GE
ROTTERDAM
NEDERLAND

Region: WEST-NEDERLAND ZUID-HOLLAND Groot-Rijnmond
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Organization: GEORG-AUGUST-UNIVERSITY GOETTINGEN
Contact person Address
Name: DROESE, Manfred (Prof.) KLINIK UND POLIKLINIK FUER NEUROLOGIE
Robert-Koch-Strasse 40
37075
GOETTINGEN
DEUTSCHLAND

Region: NIEDERSACHSEN BRAUNSCHWEIG Göttingen
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Organization: INSTITUT NATIONAL DE LA SANTE ET DE LA RECHERCHE MEDICALE
Contact person Address
Name: CHEMLA, Claudine (Mme) U 360 - RECHERCHE EPIDEMIOLOGIQUE EN NEUROLOGIE ET PSYCHOPATHOLOGIE
Hopital de la Salpetriere, 47, Boulevard de l’Hop
75651
PARIS
FRANCE

Region: ÎLE DE FRANCE Paris
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Organization: INSTITUTE OF HEALTH CARLOS III
Contact person Address
Name: GUTIERREZ FUENTES, Jose Antonio (Dr.) SUBDIRECTION GENERAL EPIDEMIOLOGIA Y CENTROS NACIONALES DE SALUD PUBLICA
Calle Sinesio Delgardo 6
28029
MADRID
ESPAÑA

Region: COMUNIDAD DE MADRID
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Organization: INSTITUTE OF PREVENTIVE AND CLINICAL MEDICINE
Contact person Address
Name: NYULASSY, Stefan (Prof.) DEPARTMENT OF SLOW VIRUS INFECTIONS
14,Limbova 14
833 01
BRATISLAVA
SLOVENSKA REPUBLIKA

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Organization: ISTITUTO SUPERIORE DI SANITA
Contact person Address
Name: BENAGIANO, Giuseppe (Prof.) VIROLOGY LABORATORY
Viale Regina Elena 299
00161
ROMA
ITALIA

Region: LAZIO Roma
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Organization: THE UNIVERSITY OF MELBOURNE
Contact person Address
Name: PERCIVAL, David (Mr) DEPARTMENT OF PATHOLOGY
Grahan street
3010
PARKVILLE VICTORIA


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Organization: UNIVERSITY OF VIENNA
Contact person Address
Name: BUDKA, Herbert  INSTITUTE OF NEUROLOGY
Waehringer Guertel 18-20
1097
WIEN
ÖSTERREICH

Region: OSTÖSTERREICH WIEN
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Organization: UNIVERSITY OF ZURICH
Contact person Address
Name: AGUZZI, Adriano  INSTITUTE OF NEUROPATHOLOGY
Scmelzbergstrasse 12
8091
ZURICH
SCHWEIZ/SUISSE/SVIZZERA

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Sources: European Commission